The Florida Society of Rheumatology has officially signed onto a letter advocating for stronger patient cost protections in the upcoming 2026 Notice of Benefit and Payment Parameters. This move aligns the organization with the All Copays Count Coalition (ACCC), a coalition of over 90 patient and provider organizations dedicated to ensuring that individuals with serious, rare, and complex chronic conditions can afford necessary healthcare.
The letter addresses critical concerns regarding out-of-pocket costs for patients, particularly focusing on the rising financial burdens associated with Affordable Care Act (ACA) plans, which could exceed $10,000 for the upcoming year. The ACCC emphasizes that such an amount is unmanageable for many Americans, leaving them vulnerable to worsening health and increased medical debt.
In their correspondence to Administrator Brooks-LaSure of the Department of Health and Human Services (HHS), the coalition expressed urgency for HHS to expedite rulemaking concerning whether copay assistance should count as cost-sharing payments. They argue that recognizing this support is vital for the financial wellbeing of patients who are reliant on life-saving medications.
The letter also highlights the distressing trend of healthcare costs outpacing wages, which exacerbates financial strain on households. The ACCC urges HHS to adopt policies that would lower maximum out-of-pocket limits and require insurers to include copay assistance in out-of-pocket calculations, thereby providing necessary protections to the most vulnerable patients.
As advocacy efforts continue, the Florida Society of Rheumatology stands committed to promoting equitable healthcare access and affordability for those who depend on chronic disease management. This collaboration reflects a growing recognition of the need for comprehensive reforms that prioritize patient needs in the healthcare system.